Canadian FOP Network
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Welcome

The Canadian FOP Network (CFOPN) is non-profit volunteer organization made up of parents of children with Fibrodysplasia Ossificans Progressiva (FOP), youth and adults with FOP, caregivers, family members and friends.

CFOPN is proud to work alongside the International FOP Association (IFOPA) www.ifopa.org, an expert organization dedicated to supporting families around the world with this ultra-rare genetic disease, to raise much needed funds to achieve these goals.

FOP is one of the most disabling musculoskeletal conditions known to mankind.  It is a rare progressive disease causing bone to form in muscles, tendons, ligaments and other connective tissues.
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Our office address is:

19 - 13085 Yonge Street, MB 107
Richmond Hill, ON
L4E 0K2

You can email us at:  [email protected]

​To join the Canadian FOP Network, please send us an email message with your details. Membership is free.

CFOPN is a member of:

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19-13085 Yonge St.
Richmond Hill, ON
L4E 0K2
Ph #: ​604-837-8460
 email: [email protected]
Registered Charity #834338691RR0001
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