CANADIAN FOP NETWORK
FIBRODYSPLASIA OSSIFICANS PROGRESSIVA
Please feel free to contact the Canadian Fibrodysplasia
Ossificans Progressiva Network (CFOPN) if you wish to learn more about
FOP, if you are interested in volunteering for a wonderful
worthwhile cause or if you wish to host or sponsor a fundraising
event to fund research.
We also invite you to contact any one of
our parent Board of Directors personally through their e-mail
addresses listed below.
Mail:
Canadian FOP Network
101 Brixham Crescent
London, Ontario, Canada
N6K 1K9
Thank you for taking the time to visit our website. We welcome any feedback or suggestions about the website or anything else you wish to discuss in relation to this important cause.
Carrie Connell
President
Carrie lives in London, Ontario with her husband and two children. Her youngest child, Brooke, was diagnosed with FOP in 2007 at age six. Soon after they founded the Canadian FOP Network and were joined by other families and friends across Canada.
Karen Munro
Vice-President
Karen lives in Burnaby, British Columbia with her husband and two children. Her daughter Miranda was diagnosed with FOP in 2007 at age two. In addition to being a mother and her involvement with the Canadian FOP Network, Karen is a lawyer.
Karen Lyons
Treasuer/Web Admin
Karen lives in London, Ontario with her husband and furry friends and works as an Accountant. Soon after Brooke was introduced to this terrible disease, she joined the Canadian FOP Network along with other family and friends.