Links

CANADIAN FOP NETWORK

FIBRODYSPLASIA OSSIFICANS PROGRESSIVA

The International Fibrodysplasia Ossificans Progressiva Association (IFOPA)

Indepth medical information and support for families and friends from around the world dealing with FOP.

FOP Facts in Brief

Brief facts on FOP including Clinical Characteristics, Demographics and the University of Pennsylvania's dedication in finding a cure.

FOP Facts in Brief

Canadian Organization for Rare Disorders (CORD)

Providing information, education and support on thousands or rare disorders and advocating for fund raising and research.

Canadian Organization for Rare Disorders

Canadian Orthopaedic Foundation

The Foundation is Canada's only health charity dedicated solely to helping people maintain and regain their bone and joint or orthopaedic health.

Canadian Orthopaedic Foundation

Wikipedia

The free encyclopedia explains what little we know about FOP

Wikipedia/FOP

MEDICAL NEWS

Northwestern University researches FOP

Jack Kessler of Northwestern University uncovers interesting findings and potential treatment for FOP.

LaboratoryEquipment.com Scientist of the Week

Potential Treatment Found for Debilitating Bone Disease in Wounded Soldiers and Children

Promising new research from the Children's Hospital of Philadelphia.

PR Newswire

Discovery News: Scientists Discovery Why Bones Grow on Muscle

Researchers think they've found out why some people's muscles mistakenly grow bone.

DiscoveryNews

Eurekalert: New Study stops Excessive Bone Growth

A new study finds a way to stop excessive bone growth following trauma or surgery.

Eurekalert: New Study

TheScientist.com: Tooth Ferry

The Tooth Ferry helps scientists research a cure for FOP.

Tooth ferrying :The Scientist

LIVING WITH FOP

Registered Disability Savings Plan (RDSP)

The Government of Canada has provided a way to help eligible people with severe and prolonged disabilities, their families and others to save for long-term financial security.

Registered Disability Savings Plan

2Care4 Medical Limited

Equipment and supplied that help with adopting to life with FOP.

2care4medical

AllSource Depot

Equipment and supplies that help with adapting to life with FOP.

AllSourceDepot

Arjohuntleigh

Equipment and supplies that help with adapting to life with FOP.

Arjohuntleigh

Dynamic-Living.com

Gadgets and gizmos that help make living with FOP easier.

Dynamic Living

Play to Podium

Play to Podium is for parents, healthcare professionals and activity providers working to help youth with disabilities be active, learn, grow and discover their potential.

Playtopodium

OUR STORIES

Newsweek: 15 People Who Make America Great

Newsweek acknowledges Dr. Fred Kaplan's devotion to finding a cure for FOP.

Newsweek article

Friends with FOP

Miranda Friz of Burnaby, British Columbia was born in 2005 and has FOP. Her mother, Karen Munro, operates Friends with FOP in conjunction with another FOP mom, Suzanne McCloskey from Seattle, Washington. The site is about the two families' experiences raising their two young girls with FOP.

Friends with FOP

YorkRegion.com: Aurora family seeks cure for rare disease

Vanessa Herce holds charity ride for her sister (Valerie).

YorkRegion.com

Burnabynow: Biking for a cure to end FOP

BurnabyNow reports on little girl (Miranda) afflicted by rare disease that locks people in a 'second skeleton'.

Burnabynow

Gonzales Tribune: Four-year-old wins Heart of Gonzales Police Department

Shane Terry, a little boy who lives in Watertown, NY, has stolen the hearts of the Gonzales Police Department, and they aim to be a big part of his life.

gonzalestribune

National Post: Trapped in her Bones

Brianne's story on living with FOP.

Trapped in her bones

The Sun: Teen will turn to Human Statue

Seanie Nammock’s story on fighting this devastating disease.

Teen will turn to Human Status

VIDEOS

MSNBC: Josh Scoble - The Boy Whose Muscles are Turning to Bone

As broadcasted on the Today Show October 16, 2009

Josh's story

You Tube - Mystery Diagnosis: Girl Who Couldn't Move