Links

CANADIAN FOP NETWORK

FIBRODYSPLASIA OSSIFICANS PROGRESSIVA

WEBSITES

The International Fibrodysplasia Ossificans Progressiva Association (IFOPA)

Indepth medical information and support for families and friends from around the world dealing with FOP.

IFOPA

FOP Facts in Brief

Brief facts on FOP including Clinical Characteristics, Demographics and the University of Pennsylvania's dedication in finding a cure.

FOP Facts in Brief

Canadian Organization for Rare Disorders (CORD)

Providing information, education and support on thousands or rare disorders and advocating for fund raising and research.

Canadian Organization for Rare Disorders

Friends with FOP

Miranda Friz of Burnaby, British Columbia was born in 2005 and has FOP. Her mother, Karen Munro, operates Friends with FOP in conjunction with another FOP mom, Suzanne McCloskey from Seattle, Washington. The site is about the two families' experiences raising their two young girls with FOP.

Friends with FOP

Magic Mountain Toys

With every purchase at Magic Mountain Toys, you are supporting FOP research and helping find a cure.

Magic Mountain Toys

Canadian Orthopaedic Foundation

The Foundation is Canada's only health charity dedicated solely to helping people maintain and regain their bone and joint or orthopaedic health.

Canadian Orthopaedic Foundation

Registered Disability Savings Plan (RDSP)

The Government of Canada has provided a way to help eligible people with severe and prolonged disabilities, their families and others to save for long-term financial security.

Registered Disability Savings Plan

Dynamic-Living.com

Gadgets and gizmos that help make living with FOP easier.

Dynamic Living

Newsweek: 15 People Who Make America Great

Newsweek acknowledges Dr. Fred Kaplan's devotion to finding a cure for FOP.

Newsweek article

Eurekalert: New Study stops Excessive Bone Growth

A new study finds a way to stop excessive bone growth following trauma or surgery.

Eurekalert: New Study

TheScientist.com: Tooth Ferry

The Tooth Ferry helps scientists research a cure for FOP.

Tooth ferrying :The Scientist

Gonzales Tribune: Four-year-old wins Heart of Gonzales Police Department

Shane Terry, a little boy who lives in Watertown, NY, has stolen the hearts of the Gonzales Police Department, and they aim to be a big part of his life.

gonzalestribune

National Post: Trapped in her Bones

Brianne's story on living with FOP.

Trapped in her bones

The Sun: Teen will turn to Human Statue

Seanie Nammock’s story on fighting this devastating disease.

Teen will turn to Human Status

VIDEOS

MSNBC: Josh Scoble - The Boy Whose Muscles are Turning to Bone

As broadcasted on the Today Show October 16, 2009

Josh's story

You Tube - Mystery Diagnosis: Girl Who Couldn't Move