Could your child be living with undiagnosed FOP? Here’s what to look for

Carrie Connell’s daughter, Brooke, was diagnosed with the ultra-rare bone condition at five years of age. Now, she encourages parents and health care professionals alike to know how to spot its telltale signs.​https://www.todaysparent.com/sponsored/patient-voice-fibrodysplasia-ossificans-progressiva/

​Building a good life in a body slowly turning to bone

​Life with an ultra-rare condition like FOP can be isolating, especially in a rural prairie town. For Kathleen Degenhardt, building community — both in-person and online — is an important remedy.
https://www.patientvoice.io/rarevoices/kathleen