Our Friends Around the World
The International FOP Association (http://www.ifopa.org) is our expert partner that unites all of our countries to find a cure around the globe for Fibrodysplasia Ossificans Progressiva. See links below to other dedicated FOP associations.
Netherlands - http://www.fopstichting.nl
United Kingdom - http://www.fopfriends.com/
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The Sienna Foundation - Researchers have been working on effective treatments to stop the progression of FOP and believe clinical trials for an effective treatment are just around the corner. We’re going to raise a million dollars to fund that trial!
Go to www.SiennasFlowerGarden.com to learn more and help us spread the word! |