FOP Research
As of 2022, Canada has one approved medical treatment for FOP, a medication called Sohonos, the brand name, or Palovarotene, the generic/medical name. Sohonos is now available and is approved for public funding. Sohonos is believed to minimize the amount of ossification that occurs through FOP flare-ups. Review the Ipsen Canada Sohonos Educational Materials for detailed product and safety information. Also, access Canada's Drug Agency report on Palovarotene for additional information on Sohonos and it's reimbursement considerations.
Other potential FOP medications are currently the focus of pre-clinical and clinical testing.
For information about how to take part in clinical testing of FOP medications, please see the information provided by the International FOP Associations at the following link: https://www.ifopa.org/about-clinical-trialswww.ifopa.org/about-clinical-trials
CFOPN raises funds to support research as listed below:
University of Pennsylvania, Centre for FOP Research
The Center for Research in FOP & Related Disorders is the world’s first and only comprehensive research program in FOP. The activities of The Center are broad and comprehensive and focused on seven spheres of activity. For more information...
University of Alberta
The Canadian FOP Network and the IFOPA have joined forces to fund research conducted by rare disease experts at the University of Alberta through the IFOPA’s Competitive Research Grant (CRG) Program. The study will test DNA-like molecules known as “antisense oligonucleotides” in a mouse model of FOP, with the hope that successful completion may one day lead to clinical trials for patients with FOP. For more information....
Other potential FOP medications are currently the focus of pre-clinical and clinical testing.
For information about how to take part in clinical testing of FOP medications, please see the information provided by the International FOP Associations at the following link: https://www.ifopa.org/about-clinical-trialswww.ifopa.org/about-clinical-trials
CFOPN raises funds to support research as listed below:
University of Pennsylvania, Centre for FOP Research
The Center for Research in FOP & Related Disorders is the world’s first and only comprehensive research program in FOP. The activities of The Center are broad and comprehensive and focused on seven spheres of activity. For more information...
University of Alberta
The Canadian FOP Network and the IFOPA have joined forces to fund research conducted by rare disease experts at the University of Alberta through the IFOPA’s Competitive Research Grant (CRG) Program. The study will test DNA-like molecules known as “antisense oligonucleotides” in a mouse model of FOP, with the hope that successful completion may one day lead to clinical trials for patients with FOP. For more information....