Volunteer Board and Dedicated Officers of CFOPN

​Karen Munro
President and Board Chair
​IFOPA International President Council Ambassador for Canada

Karen lives in Port Moody, British Columbia with her husband and son. Her daughter Miranda was diagnosed with FOP in 2007 at age 2 and sadly passed away in 2020 at age 15. Despite Miranda's passing, Karen continues her involvement with the Canadian FOP Network. Karen is also a lawyer. You can reach Karen at ​[email protected].

Steven Hamilton
Treasurer and Board Member

​Steve lives in Stittsville, Ontario with his wife and two children. His youngest son Jaxon was diagnosed with FOP at a young age. Steve is retired from a career in software engineering. You can reach Steve at [email protected].

​Kathleen Degenhardt
Social Media Ambassador and Board Member

Kathleen lives in Goodsoil, Saskatchewan with her parents on their family farm. She was diagnosed with FOP when she was 4 years old. She has taken part in fundraising for the CFOPN with the Munro family for many years. She works from home as a Medical Transcriptionist Healthcare Documentation Specialist. You can reach her at [email protected]. 

Clara Bouchard
Secretary and Board Member

Clara lives in Montreal, Quebec with her family and is a university student in Criminology. She also works in a rehabilitation center helping adults living with addictions. Clara was diagnosed with FOP at age 4. You can reach her at [email protected].