Dedicated to raising awareness and research funds for a rare bone disease called Fibrodysplasia Ossificans Progressiva (FOP).
Videos from our Global FOP Community
What is Fibrodysplasia Ossificans Progressiva (FOP)?
FOP turns children into human statues: a healthy mind locked inside a frozen body. It is an ultra-rare orphan disease which progressively turns muscles and connective tissue to bone, permanently fusing their joints and causing immobility. The malformed big toes and presentation of mysterious swellings and/or stiffness are easily identified signs but often missed due to lack of awareness.
There are new research initiatives on the horizon for fibrodysplasia ossificans progressiva and trial preparations have begun and this research will impact other more common medical conditions that affect much larger groups of people. Researchers are also looking at what positive impact FOP research/treatments may have for people with childhood brain cancer, osteoporosis, chronic anemia, stem cell therapy, atherosclerosis, vascular calcification and heterotopic ossification experienced by wounded soldiers and a percentage of hip surgery patients.
So please help, because the hope of children and adults with FOP rests with people like you, people who care.
In these rarest of children mother nature has hidden secrets that, if uncovered, would impact all other diseases that affect the masses -
Dr Fred Kaplan
Thank you to everyone for another fantastic event and over $13,000 in proceeds being donated to CFOPN!
Across Canada Events
Annual General Meeting
The Canadian FOP Network hereby gives notice of it's Annual General Meeting.
Date: Sunday, November 24, 2019
Time: 2:00 pm EDT by Zoom
RSVP: You must email Canadianfopnetwork@live.com to receive the Zoom coordinates before November 20, 2019.
#Golf4BrookeSo grateful and excited to share that we finally finished crunching the numbers and the total you all helped raise this year for #FOPResearch from the 3rd Annual Brooke Connell Golf Tournament was over $21,300.00 #tournamentbest (after all expenses paid) and some money still coming in. We had a fantastic golf day, and our genuine and very entertaining MC Jake McKenzie really made the evening fun!😀 We even made some new friends who want to become more involved next year! ❤️ Thanks to everyone who made this happen and especially our hard working #smallbutmighty Golf Committee xoxo
FOP Stampede BBQ and Dessert Contest
A new twist to their annual fundraising drive and this fun BBQ and dessert cookoff raised $22,000 in proceeds being donated to CFOPN!
Sault Ste Marie Annual