"In these rarest of children mother nature has hidden secrets that, if uncovered, would impact all other diseases that affect the masses"
Dr Fred Kaplan, International FOP Specialist

What is Fibrodysplasia Ossificans Progressiva (FOP)?

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FOP Turns Children into Human Statues
a healthy mind locked inside a frozen body. It is an ultra-rare orphan disease which progressively turns muscles and connective tissue to bone, permanently fusing their joints and causing immobility. The malformed big toes and presentation of mysterious swellings and/or stiffness are easily identified signs but often missed due to lack of awareness.

There are new research initiatives on the horizon for fibrodysplasia ossificans progressiva and trial preparations have begun and this research will impact other more common medical conditions that affect much larger groups of people. Researchers are also looking at what positive impact FOP research/treatments may have for people with childhood brain cancer, osteoporosis, chronic anemia, stem cell therapy, atherosclerosis, vascular calcification and heterotopic ossification experienced by wounded soldiers and a percentage of hip surgery patients.

So please help, because the hope of children and adults with FOP rests with people like you, people who care.
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COVID19 AND FOP
If you have FOP and you get a COVID INFECTION please visit https://www.ifopa.org/other_research to participate in a study of the impact of Covid on individuals with FOP. Thank you and be well.

EVENTS

Canadian FOP Family Conference
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Date: Saturday September 24, 2022
Time: 1:00 - 4:00 p.m.
Location: Online Zoom platform
Register: Online at cfopnfamconf22.eventbrite.ca
Join us for this virtual Canadian FOP Family Meeting where we will meet our Canadian FOP Specialists, including:
  • Dr. Angela Cheung, Toronto University Health
  • Dr Peter Kannu, University of Alberta
  • Dr. Clive Friedman, Board Certified Dentist, London, Ontario
There will also be other medical teams discussing respirology, and other relevant topics related to FOP health.

Information on Clinical Trials will be presented along with presentations from pharmaceutical companies.

A detailed agenda will be released prior to the event.
Due to Covid 19 the CFOPN is cancelling all events that are not online. Life will go back to normal once we have received the all clear. Please be kind to each other and take care of one another.

CALGARY
FOP Stampede BBQ & Dessert Contest

A new twist to their annual fundraising drive and this fun BBQ and dessert cookoff raised $22,000 in proceeds being donated to CFOPN!

LONDON
4th Annual
Brooke Connell Golf Tournament

DATE TBA
9am Registration
10am Shot Gun Start
4:30pm Cocktails & Guests arrive
5:30pm Dinner Buffet
More information & Flyer

NEW MARKET
Ride & Walk to Cure FOP

Thank you to everyone for another fantastic event and over $13,000 in proceeds being donated to CFOPN!

SAULT STE MARIE
Annual 5k Run/Walk for FOP

Thank you to our Soo families and community who come out each year for this event! All the hard work paid off again this year. Total amount raised TBA soon.

Videos from our Global FOP Community

 Our Expert Partner - The International FOP Association (IFOPA)

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You can also visit Focus-on-FOP in Canada for up-to-date information