Canadian FOP Network
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Our Mission

Dedicated to raising awareness and research funds for a rare bone disease called Fibrodysplasia Ossificans Progressiva (FOP)

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"In these rarest of children mother nature has hidden secrets that, if uncovered, would impact all other diseases that affect the masses"
Dr Fred Kaplan, International FOP Specialist


What is Fibrodysplasia Ossificans Progressiva (FOP)?


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𝓕𝓞𝓟 𝓽𝓾𝓻𝓷𝓼 𝓬𝓱𝓲𝓵𝓭𝓻𝓮𝓷 𝓲𝓷𝓽𝓸 𝓱𝓾𝓶𝓪𝓷 𝓼𝓽𝓪𝓽𝓾𝓮𝓼:
a healthy mind locked inside a frozen body. It is an ultra-rare orphan disease which progressively turns muscles and connective tissue to bone, permanently fusing their joints and causing immobility. The malformed big toes and presentation of mysterious swellings and/or stiffness are easily identified signs but often missed due to lack of awareness.

There are new research initiatives on the horizon for fibrodysplasia ossificans progressiva and trial preparations have begun and this research will impact other more common medical conditions that affect much larger groups of people. Researchers are also looking at what positive impact FOP research/treatments may have for people with childhood brain cancer, osteoporosis, chronic anemia, stem cell therapy, atherosclerosis, vascular calcification and heterotopic ossification experienced by wounded soldiers and a percentage of hip surgery patients.

So please help, because the hope of children and adults with FOP rests with people like you, people who care.



EVENTS

February is 𝑅𝒶𝓇𝑒 𝒟𝒾𝓈𝑒𝒶𝓈𝑒 𝒜𝓌𝒶𝓇𝑒𝓃𝑒𝓈𝓈 month! Please share your stories, videos or other messages on Social Media or other mediums you feel comfortable!

Due to Covid 19 the CFOPN is cancelling all events that are not online. Life will go back to normal once we have received the all clear. Please be kind to each other and take care of one another.

CALGARY
FOP Stampede BBQ & Dessert Contest

A new twist to their annual fundraising drive and this fun BBQ and dessert cookoff raised $22,000 in proceeds being donated to CFOPN!

LONDON
4th Annual
Brooke Connell Golf Tournament

DATE TBA
9am Registration
10am Shot Gun Start
4:30pm Cocktails & Guests arrive
5:30pm Dinner Buffet
More information & Flyer

NEW MARKET
Ride & Walk to Cure FOP

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Thank you to everyone for another fantastic event and over $13,000 in proceeds being donated to CFOPN!

SAULT STE MARIE
Annual 5k Run/Walk for FOP

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Thank you to our Soo families and community who come out each year for this event! All the hard work paid off again this year. Total amount raised TBA soon.

Videos from our Global FOP Community



Our Expert Partner

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CFOPN is a member of:

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CFOPN, 101 Brixham Cr, London, ON, N6K 1K9
Ph#: 226-377-1282
Registered Charity #834338691RR0001
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