Dedicated to raising awareness and research funds for a rare bone disease called Fibrodysplasia Ossificans Progressiva (FOP).
Videos from our Global FOP Community
What is Fibrodysplasia Ossificans Progressiva (FOP)?
FOP turns children into human statues: a healthy mind locked inside a frozen body. It is an ultra-rare orphan disease which progressively turns muscles and connective tissue to bone, permanently fusing their joints and causing immobility. The malformed big toes and presentation of mysterious swellings and/or stiffness are easily identified signs but often missed due to lack of awareness.
There are new research initiatives on the horizon for fibrodysplasia ossificans progressiva and trial preparations have begun and this research will impact other more common medical conditions that affect much larger groups of people. Researchers are also looking at what positive impact FOP research/treatments may have for people with childhood brain cancer, osteoporosis, chronic anemia, stem cell therapy, atherosclerosis, vascular calcification and heterotopic ossification experienced by wounded soldiers and a percentage of hip surgery patients.
So please help, because the hope of children and adults with FOP rests with people like you, people who care.
In these rarest of children mother nature has hidden secrets that, if uncovered, would impact all other diseases that affect the masses -
Dr Fred Kaplan
We are proud to announce our 8th annual ride with be held on AUGUST 24, 2019 and will incorporate a walking route once again!
Thanks to the generosity of friends, family, and countless supporters, we have raised approximately $130,000 since our first ride in 2010.
Across Canada Events
#Golf4BrookeSo grateful and excited to share that we finally finished crunching the numbers and the total you all helped raise this year for #FOPResearch from the 3rd Annual Brooke Connell Golf Tournament was over $21,300.00 #tournamentbest (after all expenses paid) and some money still coming in. We had a fantastic golf day, and our genuine and very entertaining MC Jake McKenzie really made the evening fun!😀 We even made some new friends who want to become more involved next year! ❤️ Thanks to everyone who made this happen and especially our hard working #smallbutmighty Golf Committee xoxo
FOP Stampede BBQ and Dessert Contest
In previous years we've done a joint "Walk for FOP" fundraiser with the Degenhardt family of Saskatchewan. This year the Degenhardts are unavailable, so we're "flying solo" and will be doing a different event... On Saturday, July 13, 2019, to coincide with the Calgary Stampede, the Munro/Friz family will be holding our FOP Stampede BBQ and Dessert Contest!
CCongratulations and thanks to everyone who participated, sponsored and donated the Soo Run/Walk in August raising $5600.00!