Clementia Biotechnology Company Focused on Developing a Cure for FOP
Clementia is a privately-held, clinical stage biotechnology company dedicated to the development and commercialization of treatments for people living with rare diseases by exploiting the use of novel Retinoic acid receptor gamma agonists (RARγ) to address diseases of heterotopic ossification, including Fibrodysplasia Ossificans Progressiva.
22nd Annual Report of the Collaborative Research Project
The 22nd Annual Report is now available.
Congratulations! $26,000.00 raised at the 2nd Annual London Ride to Cure FOP
Saturday, July 20, 2013
Thank you so much to everyone who supported our event this year making it bigger and even better than last year! We had amazing volunteers, sponsors and participants. Friends, family and our community really got behind this grass-roots event and helped us raise $25,500 (and money is still trickling in!) As one participant put it "There was such a sense of community at this event". Funds go to cfopn in honour of Brooke Connell and others afflicted with FOP to further new directions of research. Our site at www.londonridetocurefop.com is currently asleep and we will wake it up next April. Pictures of our event will be posted soon. If you would like to contact someone about this event in the meantime, please contact Carrie at canadianfopnetwork@live.com.
Congratulations! $6,000.00 raised at the 2nd Annual Sault Ste Marie 5k Run/Walk for FOP
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Congratulations $14,700.00 raised at the Stouffville Ride to Cure FOP
Saturday, August 24, 2013
Valerie Herce & family successfully hosted their 4th annual Ride to Cure FOP and celebratory BBQ on August 24th, 2013 in the Whitchurch Stouffville area. They were excited to add a walking route to their event this year and it was a big success. Thank you to everyone who joined them in making a difference! The event website at http://www.ridetocurefop.com/ will be put to sleep until next year. If you would like to contact someone about this event in the meantime, please contact Valerie at ridetocurefop@gmail.com.
Congratulations! $6,000.00 raised at the Calgary Ride to Cure FOP
Sunday, July 28, 2013
Pete and Karen hosted a “Ride and Walk to Cure FOP” on Sunday, July 28, 2013 at Calgary’s Baker Park! In an effort to do something a little different this year they did a parents vs. kids fundraiser. Pete and Karen had their own Giving Page and Owen and Miranda had theirs. I think that it was apparent pretty quickly that Owen and Miranda would win the fundraising challenge. Big thanks to everyone who donated and participated and helped us raise an amazing 6,000.00!
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