Research Currently there is no medicine for FOP, only medicine to help with inflammation and pain that accompany flare-ups of muscle death and bone building.
There is a new horizon of HOPE for the kids/individuals with FOP and their families. More Centres of Excellence are beginning to research answers for FOP. CFOPN raises funds to support research as listed below: UPenn Centre for FOP Research The Center for Research in FOP & Related Disorders is the world’s first and only comprehensive research program in FOP. The activities of The Center are broad and comprehensive and focused on seven spheres of activity. For more information... University of Alberta The Canadian FOP Network and the IFOPA have joined forces to fund research conducted by rare disease experts at the University of Alberta through the IFOPA’s Competitive Research Grant (CRG) Program. The study will test DNA-like molecules known as “antisense oligonucleotides” in a mouse model of FOP, with the hope that successful completion may one day lead to clinical trials for patients with FOP. For more information.... |
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Clinical Trial Information
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IFOPA is our expert partner and has shared current information on two Pharmaceutical Companies are now recruiting for FOP drug trials. For more information, please visit our expert partner to read details.
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Clementia will SOON be recruiting in Toronto, Canada for their Phase 3 Move , please visit their site page.
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Regeneron is actively recruiting for Phase 2 trials outside of Canada. Please visit their website to learn more about them. Stay tuned to see if they are able to bring trials to Canada.
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