Supporting Research
Currently there is no approved treatment for FOP, only medicine to help with inflammation and pain that accompany flare-ups of muscle death and bone remodeling.
We are in an era of unheard of research to help find therapies and medicines for the kids/individuals with FOP and their families. CFOPN raises funds to support research as listed below: University of Pennsylvania, Centre for FOP Research The Center for Research in FOP & Related Disorders is the world’s first and only comprehensive research program in FOP. The activities of The Center are broad and comprehensive and focused on seven spheres of activity. For more information... University of Alberta The Canadian FOP Network and the IFOPA have joined forces to fund research conducted by rare disease experts at the University of Alberta through the IFOPA’s Competitive Research Grant (CRG) Program. The study will test DNA-like molecules known as “antisense oligonucleotides” in a mouse model of FOP, with the hope that successful completion may one day lead to clinical trials for patients with FOP. For more information.... |
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Clinical Trial Information
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IFOPA is our expert partner and keeps us current clinical trials available to our global community and drugs/compounds in the pipeline. Please visit our expert partner to read details.
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Clementia Clinical Trial recruiting in Toronto Canada, Ontario is FULL.
Location: Toronto General Hospital Toronto, Ontario, Canada, M5G 2C4 Contact: Irene Ho 416-340-3680 irene.ho@uhn.ca Contact: Suzanne Cohen 416-340-4850 suzanne.cohen@uhn.ca Principal Investigator: Angela Cheung, MD, PhD Sub-Investigator: Lianne Tile, MD please visitt the Clementia site for further information about the MOVE project. |
Regeneron recruiting for Phase 2 trials in
Toronto, Canada if FULL. Please visit their website to learn more about them. Location: Toronto General Hospital Toronto, Ontario, Canada, M5G 2C4 Contact: Irene Ho 416-340-3680 irene.ho@uhn.ca Contact: Suzanne Cohen 416-340-4850 suzanne.cohen@uhn.ca Principal Investigator: Angela Cheung, MD, PhD Sub-Investigator: Lianne Tile, MD |
