Volunteer Board and Dedicated Officers of CFOPN

Karen Munro
President & Board Chair, CFOPN
​IFOPA International President Council Ambassador for Canada

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Karen lives in Port Moody, British Columbia with her husband and son Owen.  Her daughter Miranda was diagnosed with FOP in 2007 at age two and sadly passed away in 2020 at the age of 15 years. Despite Miranda's passing, Karen continues her involvement with the Canadian FOP Network. Karen is also a lawyer. You can reach Karen at  
​[email protected].


Steve Hamilton
Treasurer & Board Member

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Steve lives in Ottawa, Ontario with his wife and two children. His son Jaxon was diagnosed with FOP at a young age. You can reach Steve at [email protected].

Kathleen Degenhardt
Social Media Ambassador & Board Member

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Kathleen lives in Goodsoil, Saskatchewan with her parents on their family farm. She was diagnosed with FOP when she was 4. She has taken part in fundraising for the CFOPN with the Munro family for many years. She works from home as a Medical Transcriptionist Healthcare Documentation Specialist. You can reach her at [email protected].