Volunteer Board and Dedicated Officers of CFOPN

Carrie Connell
President & Board Member, CFOPN
IFOPA International President Council Ambassador for Canada

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Carrie lives in London, Ontario with her husband and two children. Her youngest child, Brooke, was diagnosed with FOP in 2007 at age six. Soon after they founded the Canadian FOP Network and were joined by other families and friends across Canada. You can reach Carrie at canadianfopnetwork@live.com

Debbie Dizon
Recording Secretary & Board Member

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Debbie lives in Richmond Hill, Ontario with her husband and seven children.  Her son James was diagnosed with FOP in the summer of 2009 at the age of 6 years old.  Since FOP has entered into her life, she has passionately devoted her time to increasing  awareness of FOP in the community and joined the Canadian FOP Network. You can reach Debbie at d.dizon878@gmail.com.

In Memory of  Marin Wallace
Board Member

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Marin was an individual with FOP and a Board Member of CFOPN as well as a blogger and FOP Advocate. Marin participated on FOP panels and presented as well attended education and represented our organization at the Canadian Organization for Rare Diseases conferences and fundraising events. Sadly Marin passed away suddenly in October 2020. She will be missed by everyone who knew her.

Karen Munro
Vice President & Board Member, CFOPN
IFOPA Board Recording Secretary

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Karen lives in Burnaby, British Columbia with her husband and two children.  Her daughter Miranda was diagnosed with FOP in 2007 at age two.  In addition to being a mother and her involvement with the Canadian FOP Network, Karen is a lawyer. You can reach Karen at karen.munro@shaw.ca.


Darlene Dooks
Bookkeeper & Board Member

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Darlene lives in London, Ontario with her husband, Robert, and has been neighbours and friends with the Connell family for over 15 years. Darlene learned about FOP when Brooke was diagnosed and has always helped out any way she could, including FOP fundraising events. Darlene is looking forward to getting more involved with CFOPN now that she is retired. Darlene can be reached at Dooks@rogers.com.

Mitchra Persad

Treasurer