Volunteer Board & Officers

Volunteer Board and Dedicated Officers of CFOPN

Carrie Connell
President & Board Member, CFOPN IFOPA International President Council Ambassador for Canada

Carrie lives in London, Ontario with her husband and two children. Her youngest child, Brooke, was diagnosed with FOP in 2007 at age six. Soon after they founded the Canadian FOP Network and were joined by other families and friends across Canada. You can reach Carrie at canadianfopnetwork@live.com

Debbie Dizon, Board Member

Debbie lives in Richmond Hill, Ontario with her husband and seven children. Her son James was diagnosed with FOP in the summer of 2009 at the age of 6 years old. Since FOP has entered into her life, she has passionately devoted her time to increasing awareness of FOP in the community and joined the Canadian FOP Network. You can reach Debbie at d.dizon878@gmail.com.

Marin Wallace, Board Member

Marin lives in Hamilton, Ontario. She was diagnosed with FOP in 1985 at the age of 3 1/2. Marin went to England to get her MA and works in publishing. She sits on various FOP related committees and attends Canadian Organization for Rare Disorders Conferences at a very important time when Canada is developing Rare Disease legislation. You can reach Marin at marin.wallace@yahoo.ca.

Karen Munro
Vice President & Board Member, CFOPN IFOPA Board Recording Secretary

Karen lives in Burnaby, British Columbia with her husband and two children. Her daughter Miranda was diagnosed with FOP in 2007 at age two. In addition to being a mother and her involvement with the Canadian FOP Network, Karen is a lawyer. You can reach Karen at karen.munro@shaw.ca.

Darlene Dooks, Board Member

Darlene lives in London, Ontario with her husband, Robert, and has been neighbours and friends with the Connell family for over 15 years. Darlene learned about FOP when Brooke was diagnosed and has always helped out any way she could, including FOP fundraising events. Darlene is looking forward to getting more involved with CFOPN now that she is retired. Darlene can be reached at Dooks@rogers.com.

Karen Lyons, Treasurer

CURRENTLY RECRUITING FOR THIS POSITION FOR 2020
Karen lives in London, Ontario with her husband and furry friends and works as an Accountant. Soon after Brooke was introduced to this terrible disease, she joined the Canadian FOP Network along with other family and friends. You can reach Karen at canadianfopnetwork@live.com

Barbie Penno, Receipting Officer

Barbie and her family live in the beautiful and quiet town of Echo Bay, Ontario located just outside of Sault Ste. Marie. When her niece Brooke was diagnosed in 2007, she immediately joined the Network and volunteers her services to help find a cure.