Volunteer Board and Dedicated Officers of CFOPN

Carrie Connell
President & Board Member, CFOPN IFOPA International President Council Ambassador for Canada

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Carrie lives in London, Ontario with her husband and two children. Her youngest child, Brooke, was diagnosed with FOP in 2007 at age six. Soon after they founded the Canadian FOP Network and were joined by other families and friends across Canada. You can reach Carrie at canadianfopnetwork@live.com

Debbie Dizon, Board Member

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Debbie lives in Richmond Hill, Ontario with her husband and seven children.  Her son James was diagnosed with FOP in the summer of 2009 at the age of 6 years old.  Since FOP has entered into her life, she has passionately devoted her time to increasing  awareness of FOP in the community and joined the Canadian FOP Network. You can reach Debbie at d.dizon878@gmail.com.

Karen Munro
Vice President & Board Member, CFOPN IFOPA Board Recording Secretary

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Karen lives in Burnaby, British Columbia with her husband and two children.  Her daughter Miranda was diagnosed with FOP in 2007 at age two.  In addition to being a mother and her involvement with the Canadian FOP Network, Karen is a lawyer. You can reach Karen at karen.munro@shaw.ca.


Karen Lyons, Treasurer

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CURRENTLY RECRUITING FOR THIS POSITION FOR 2020
Karen lives in London, Ontario with her husband and furry friends and works as an Accountant.  Soon after Brooke was introduced to this terrible disease, she joined the Canadian FOP Network along with other family and friends. You can reach Karen at canadianfopnetwork@live.com

Barbie Penno, Receipting Officer

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Barbie and her family live in the beautiful and quite town of Echo Bay, Ontario located just outside of Sault Ste. Marie.  When her niece Brooke was diagnosed in 2007, she immediately joined the Network and volunteers her services to help find a cure.