Canadian FOP Network
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Could your child be living with undiagnosed FOP? Here’s what to look for

Carrie Connell’s daughter, Brooke, was diagnosed with the ultra-rare bone condition at five years of age. Now, she encourages parents and health care professionals alike to know how to spot its telltale signs.​https://www.todaysparent.com/sponsored/patient-voice-fibrodysplasia-ossificans-progressiva/


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​Building a good life in a body slowly turning to bone

​Life with an ultra-rare condition like FOP can be isolating, especially in a rural prairie town. For Kathleen Degenhardt, building community — both in-person and online — is an important remedy.
https://www.patientvoice.io/rarevoices/kathleen

2014 Soo 5k Run for FOP - Ian Brodie Interview

2013 Soo 5k Run for FOP - Miranda & Ian Brodie Interview

London CTV News interviews Carrie & Brooke Connell, 2013

CFOPN is a member of:

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19-13085 Yonge St.
Richmond Hill, ON
L4E 0K2
Ph #: ​604-837-8460
 email: Canadianfopnetwork@live.com
Registered Charity #834338691RR0001
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