Miranda Friz
Rest in Peace Miranda.
Sadly Miranda passed on Easter Monday, April 13, 2020 at the tender age of 15 years due to FOP related causes. Miranda had been struggling for several months with flare-ups and the fall out from those flare-ups and progression of her FOP.
Miranda will be missed by all and our hearts go out to her family. Our sympathies to Pete, Karen & Owen and the rest of the Munro and Friz families.
Sadly Miranda passed on Easter Monday, April 13, 2020 at the tender age of 15 years due to FOP related causes. Miranda had been struggling for several months with flare-ups and the fall out from those flare-ups and progression of her FOP.
Miranda will be missed by all and our hearts go out to her family. Our sympathies to Pete, Karen & Owen and the rest of the Munro and Friz families.
Miranda was born in January of 2005, and was diagnosed with FOP at age 2 years, 3 months. At the end of 2008, she is now almost 4 years old. She lives in Burnaby, British Columbia with her mom, dad and brother Owen (3 years older).
Miranda has a lively imagination, and is full of energy! She loves playing with her plastic ocean animal toys, her stuffed puppy and kitty, and especially her brother. She also enjoys running around outside, and gathering stones, sticks, seashells, and whatever else she can find...
While mom and dad are working, Miranda attends daycare 3 days per week. She does a preschool program at daycare, and is learning to recognize her letters and numbers, and is even learning a few words in French. At home, she loves to look at books and listen to stories.
Miranda is in so many ways a typical little girl. However, she has challenges no child should have to experience: her right elbow is locked in an L-shape, her shoulders move very little and her back and neck are rigid, all due to the effects of FOP. Miranda and her family greatly anticipate the day when a medication will halt the further progression of her FOP, and surgery will be an option to correct some of the damage already done. Please help us reach that day by donating to the CFOPN, so we can fund research for treatment and an eventual cure for FOP!
Miranda has a lively imagination, and is full of energy! She loves playing with her plastic ocean animal toys, her stuffed puppy and kitty, and especially her brother. She also enjoys running around outside, and gathering stones, sticks, seashells, and whatever else she can find...
While mom and dad are working, Miranda attends daycare 3 days per week. She does a preschool program at daycare, and is learning to recognize her letters and numbers, and is even learning a few words in French. At home, she loves to look at books and listen to stories.
Miranda is in so many ways a typical little girl. However, she has challenges no child should have to experience: her right elbow is locked in an L-shape, her shoulders move very little and her back and neck are rigid, all due to the effects of FOP. Miranda and her family greatly anticipate the day when a medication will halt the further progression of her FOP, and surgery will be an option to correct some of the damage already done. Please help us reach that day by donating to the CFOPN, so we can fund research for treatment and an eventual cure for FOP!
